Saw the Rheumatologist yesterday, and he has diagnosed Fibromyalgia – which is what we had expected. Doesn't necessarily rule out ME/CFS, as they are so closely linked, but it's good to know that it's not 'all in my head' as some have suggested.
Several people have asked what it is – so have posted more info on Fibromyalgia here.
We had lots of fun at Barleylands Farm today. My girlfriends cousins, Emily & Isobel, and Aunty Linda came too. They all played on a trampoline while I was sleeping, though. It's not fair!
Grrr, Dr's!
Still no closer to getting anything sorted. Was dicharged from the vestibular clinic on Wednesday and told there was nothing wrong with my ears or my hearing, though everyone disagrees with the latter. Had the worst attacks of dizziness ever over the weekend, and spent far too much time lying on the floor as a result, unaware of exactly how I got there.
Just been to the GP again this morning for my monthly visit. Got a new certificate for the DWP to lose in their filing system along with the others, and was put straight back onto the tablets that the vestibular consultant told me to stop taking, cos the problem is all with my ears apparently. Make sense of that!
Worst part of the visit, though, was the look on the Dr's face once he took my blood pressure. He took it again cos he didn't believe it could be whatever it said it was. So now have to get that checked every 2 weeks for the next couple of months cos they may need to treat me for that also.
Still waiting to see the Rheumatologist for the Fibromyalgia test, which may bring us closer to knowing if it is ME/CFS or not. Got another Dr coming to assess me on behalf of the DWP tomorrow to see if I qualify as disabled or not. He may leave here less able to walk than me if he says not!
Of course, still heard nothing else from any of the other ppl that we're waiting to hear from in order for me to start to rebuild at least a small part of my life. Gonna go crawl back under my rock….